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We're all Related by Blood
Brenda

I am happy to
tell you that my life is getting easier. Having a child is never
simple, but having a baby when you have an undiagnosed bleeding
disorder is a whole new kind of hard.
Ever since
I was a child, I've known that I'm a carrier of Hemophilia A. Like
so many other carriers, I've lived with the symptoms of a bleeding
disorderheavy bruises from minor thumps, prolonged bleeding
after seeing the dentist, and periods that last up to three weeks.
Women express
Hemophilia differently than men, and this has made treatment difficult.
I put as much time and energy into my own care as I could, while
still caring for my son. I have had some success in treating my
disorder, but overall I felt very discouraged. No health care professional
I was working with seemed to know how to treat my condition..
Then I was
invited to attend a Hemophilia Ontario educational event, the Women's
Wellness Weekend in Kingston, and things started to get better.
It gave me an opportunity to meet experts from across Ontario, as
well as other women who are living with the same condition.
When I left
for the event I was feeling hopeless, like I would never be able
to manage my condition. When I returned home, I was filled with
hope and joy.
I am now connected
with a treatment expert. I know other people who know what I'm going
through, because they've been there before. I can't tell you the
difference this has made in my life. I feel like I have something
to look forward to again..
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